I realized this weekend that my walls are WAY up. I had thought I was mellowing and settling but I saw how much work I have to do. It was a girl's weekend, all piled into a condo laughing and sharing our lives. I did not want to share my life. I felt compelled to stay upstairs in my bed and pull the blankets over my head. Obviously I have stories to share that are appropriate and lovely but they are so deeply intertwined with my stories of discord and heartbreak it is hard to separate them out and tell them in a charming manner that screams "Look at me, I'm normal just like you". I can't tell the story of my children without telling about my nephew which means I have to explain why I have him. And even as vague as I have learned to be, I hate the unsure glances and the sickening smell of curiosity and judgement milling around the room. People want to feel bad for me but they must at the exact same time wonder who my sister is and what mother would leave her child behind. They get a little more protective of their stories and their lives, they get a little self righteous. The line gets thicker between us. I'm not welcome on the other side of the line anymore even if I have done nothing wrong. I want to be separate from my sister as much as I want to be completely entombed with her to protect her and give her some credibility. Having a sister who still loves you after everything you've done gives her some credibility, it makes people give her a second chance because it means there must be something worthwhile about her even if they can't see it. So it is still my responsibility to keep her in this race and shuffle her through to the finish line and bear the judgments that rain down on her. It is still my cross even though I have tried to shed it and allow her the responsibility of her own life. We are both irrevocably changed by this disease, we are colored by it even when you don't know it. You just know there is something different about us. My social skills are lacking, my ability to be just me is nearly impossible. I don't trust people with my story anymore. I don't want to get close to anyone new because I do not want to explain it and risk you walking away because of the complication. I am closed for business. My self confidence is shallow and easy to see through these days. I am so good at tricking you from far away but close up you can see it - the nervousness and the anxiety of trying to be normal just like you. I think of my sister's nervous laughter that drives me crazy, how she smokes and makes fun of everything in her attempts to find your normal. But you are not fooled. She is ousted immediately. I felt that this weekend in a tiny fraction of what she must feel everyday. And I cried for myself when I got home and then I cried for her and I realized that running is not the only thing I need to train for. I'm training for normal.
a letter to my doctor and CPN
16 years ago